Saturday, April 28, 2012

Wanting To Raise Awareness

I'm falling behind on my challenge by a couple of days.

I wasn't sure what I was going to do for W until I came across a story about Avery, a five month old baby recently diagnosed with spinal muscular atrophy, a rare genetic, incurable disorder. Since her parents know they only have a short time (the doctors give little Avery only 18 months), they've created a blog, Avery's Bucket List, to raise awareness for the disorder and also to chronicle each milestone Avery achieves, such as sitting up, first tooth, etc. Here is their story: Parents' Bucket List

I want to help raise awareness for Avery and others with her condition. So, if you don't mind, please pass along the site or simply visit it and comment. I couldn't imagine my grandson who is also 5 months being sick in any way. Thank you.

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1 comment:

  1. Update: I've just read the little girl passed away sometime yesterday from pulmonary complications. Rest in Peace, Avery.